Do What We Say Not What We Do

So I’ve asked a lot of people to help, Minister for Disabled People, Local MP, NHS Employers, Chief Exec (of my trust), Chairman (of my trust) ,GMC, CQC, ICO & The NHS Equality and Diversity Council (EDC)

Minister for Disabled People

Mike Penning MP & Mark Harper MP Both Conservative (Make of that what you will)

As a disabled young man I can say with complete conviction both of these men need their p45’s

I emailed him (Mike Penning) Now given I started my email with…

Firstly let me apologise for contacting you like this but I’m feeling very isolated and somewhat ignored.

You would expect a helpful, sympathetic response Janice Speaight responded with…

Many thanks for your email which has been passed to the DWP for response.

I’ve tried to get help from DWP, but it’s like trying to get blood out a stone.

On I got a response to my letter to the Minister for Disabled People. (Mark Harper)

Thank you for your further correspondence of 29 July to the Minister for Disabled People regarding Access to Work. Government Ministers receive a large volume of correspondence and they are unable to reply personally on every occasion. We have been asked to respond and apologise for the delay.

On I submitted a FIO Request.
Read More

GMC | General Medical Council

Given Confidentiality_disclosing_info_insurance_2009
You may think the GMC would take action against Dr Luff & Blackheath for writing to my employer without my consent. You would be wrong..

ICO | Information Commissioner Office

Despite admitting Dr Luff & Blackheath broke the law by writing to my employer without my consent – they did nothing.

CQC | Care Quality Commission

Took 2 years to tell me was not in their remit. Can’€™t look at individual cases.

Local MP | Bob Neill

Conservative (Make of that what you will) Bob Neill MP

I emailed Bob Neill on on 27th November 2012 13:10:16 I got a response from Vanessa Michna using Bob Neill’s email address.

In my email, I talk of making a formal complaint, the CQC & ICO.
This indicates (to me) I’€™ve got a little common sense. Vanessa Michna response was patronising. And I have no idea if Bob Neill saw my email.

The NHS Equality and Diversity Council

Email EDC on 14 October 2014 09:16 – no response
So not only do they not care. The website The NHS Equality and Diversity Council has outdated info…

The first NHS Values Summit was held in Leeds on 28th November 2012

edc statement declaration

Everyone who signed the above document is a lier and cheat. The sole reason the EDC exists is to make it look like they care.

@mark_mrdj: @DiversityJnl @NHS_EDC a thought! Does your business continuity plan address the needs of disabled employees?

This document is about the US and has no legal standing in the UK. I means if you’€™re going to publish an article at least make in relevant!


I would love for Mr Cameron or IDS to tell me to work. My response may involve being held back by the police.

…Iain Duncan Smith is said to be “very keen” to debate this. “The PM shares the work and pensions secretary’s view that we should be doing more to encourage people to take personal responsibility,” the spokeswoman added.

For three years I fought to return to work. I was told minister where too busy. After three years of being told i’m unfit for work, maybe i believe them?


I just want it noted, nothing I express in this blog is a personal attack.

@KayFSheldon: .@RoyLilley @Minghowriter CQC is not responsible for collecting data on death rates; it uses data (& other info) available + inspections…


So from this were told the CQC don’t have statistics on death rates.

Let’s think about that! Death is a simple metric you are either dead or alive. There is no middle ground. From that respect death-rates are / can be a good indication of good or bad care.

This raises debate over whether these deaths were actually “preventable”.

This debate has been going on for years. The CQC have no power to investigate individual cases. So the only course of action is to believe the trust (where the death occurred) will be honest. (fat chance)
If not you have the PHSO, but only after the trust responded and within a year of the death.
Any trust that fead oversight would delay any response with the hope of running out the clock.

Here’s the cracker that Prior ignored; the researchers concluded ‘… the incidence of preventable hospital deaths in England is lower than previous estimates’. In truth – we still have no idea. There is more interesting stuff here that concludes death is probably not the best measure of quality care.

I have a problem with the last bit of that extract. A high rate of deaths should be an indication that something is wrong.
In any statically setting a significant rise against the normal is an indication of something being a miss. To say otherwise is careless.

The last part of the article is a somewhat “unprovoked” attach on Mr Prior’s
leadership of the CQC.

On a personal note. If I was hated by people I worked with in any business then I would quit. Going to work each day should not be a struggle.
Secondly where is the vote of no confidence? If you have a leader you don’t trust why would you follow his direction ?

On a personal note. The NHS saved my life in December 2010 with a 3 month stay in ICU. ALL the staff where fantastic. They always involved me in my care, and with me unable to talk, this was something they did not have to do.

In a withering criticism of standards in the health service, David Prior, the chair of the Care Quality Commission (CQC), warns that “many patients receive poor care”.

I have so many issue with this sentence it’s hard to know where to start.
Firstly it’s the CQC’s job to “inspect” hospital / care homes etc if they are aware of bad / poor care they should use their LEGAL powers to do something about it.
I have no faith in “inspection” as a form of investigation. They intimidate and put great deal of stress on an already stressful job.

The idea the CQC can’t investigate individual complaints is crazy. We as individuals receive care – if that care is below a standard we should be able to complain to the regulator.
Inspectors are not with Doctors / Nurses 24×7 in some cases patients are. We are the best people placed to raise concerns if something is Wrong.


< @KayFSheldon: @danielmcmorrow @NHAparty @RoyLilley @Archangelolill Thanks. Comments: CQC uses death stats that r available but doesn't collect them itself/blockquote>


So once again I had an interesting response from CQC blow is my response…

I have a few concerns with this email.

However, the links that you enclosed in your correspondence do not open on our system and therefore I’d be grateful if you re-send this in another format.

Given that my original complaint was made in this format and your response to that complaint I can only assume you never read my initial complaint. I’d like a full explanation of this!
All of my emails may contain a Dropbox link. As it’s easy to do from my iPad.

Furthermore it wold also be helpful if you could clarify which service/location you are unhappy with – Heathside Neurodisability Service or Cygnet Wing Blackheath?

As they are staffed and managed by the same people, what the difference? and given this is months after my first complaint is it not a little late to be asking this?

Stage 2 review of your complaint, this is not something which we can provide for you. As advised in the correspondence from Mr Sobotka we do not have the legal powers to investigate, mediate or remedy individual complaints about the services that we register this is because there are other agencies and public bodies who have the statutory powers and remit to do this.

A. You are the CQC responsible for ensuring quality care is given…please send me a copy of your full remit.

We have two strategic priorities – to focus on quality and act swiftly to help eliminate poor quality care; and to make sure that care is centred on people’s needs and protects their rights.

Taken from cm011105_annex_b_cqc_business_plan_02-11b.pdf

Dr Luff broke that when he responded without my knowledge or permission, and act I feel was in retribution for my complaint some about him.

All doctors must ensure that a patient gives consent to a report being sent to the employer. In addition an employee has a right to see any medical report. However the legal right to see it in advance and withhold consent only applies to reports from a doctor who is treating them, but the GMC guidance makes it clear that this should apply to all medical reports. The doctor should also advise the employee in advance what the report says and discuss any concerns the employee has before it is sent. If an employer is seeking information from a doctor who has been treating an employee they should get written consent from the employee beforehand and the doctor should not disclose any information to a third party without ensuring that the employee has been given the opportunity of stating whether they wish to see such a report before it is sent.

Taken from tuc-17272-f0.cfm
The above link is to the document “Confidentiality: NHS Code of Practice”, I assume Blackheath must comply as it was the NHS paying for my care.

I also note

57. A person cannot ask a patient’s medical practitioner for a medical report on him/her for insurance or employment reasons without the patient’s knowledge and consent. Patients have the option of declining to give consent for a report about them to be written.


59. Once the patient has had access to the report, it should not be supplied to the employer/insurer until the patient has given their consent. Before giving consent, the patient can ask for any part of the report that they think is incorrect to be amended. If an amendment is requested, the medical practitioner should either amend the report accordingly, or, at the patient’s request, attach to the report a note of the patient’s views on the part of the report which the doctor is declining to amend. Patients should request amendments in writing. If no agreement can be reached, patients also have the right to refuse supply of the report.

Taken from Under The Access To Medical Record Act 1988

B. Please provide me with contact who are responsible for this then
and explain why it’s taken this long to be told this

C. In your own report, you found errors with procedures at Blackheath. I am giving you my account of my time a Blackheath witch not only expands on your report but confirms it, so it’s hardly an individual complaint.
I was only one of maybe. 15 residents who could effectively speak, you have a duty to assess Blackheath based on you own findings.

If you continue to clim it’s not within your remit I will have to escalate my complaint to the health select committee. As a failure of duty.


So just when I thought the CQC could not surprise me anymore

@KayFSheldon: @danielmcmorrow @PutneyDebates @daveskid73 @BobbyOven I can’t discuss your individual situation on Twitter.

@danielmcmorrow: @KayFSheldon @PutneyDebates @daveskid73 @BobbyOven well email me

@KayFSheldon: @danielmcmorrow @PutneyDebates @daveskid73 @BobbyOven Sorry, I can’t help with your personal situation.